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  • Bladder Problems

    Background: I have had trouble peeing for a long time. For most of the time, all I had to do was push and it would come. But since March, my urgency has increased.

    I went to my doctor and got an appointment to see a specialist in November. That was in June. Now it's September and it got worse. As in, I-have-to-sleep-late-to-avoid-getting-up-to-pee worse. My latest is 4am yesterday morning, and this morning wasn't all that better.

    Because I sleep late, my schedule has been pushed back. I wake at 10am, eat breakfast at noon, lunch at 4, and dinner at 9-10pm.

    Yesterday, we went to a walk-in clinic only to be told that pills will not help me. Now I'm in the ER, waiting to be seen by a doctor.

    Wish me luck!

    UPDATE: I'm home from the ER, so I can tell you more about what I saw and what happened to me.

    Once my mother and I arrived, we sat down in the waiting area. The triage nurse asked my mom to stand up since the seats were reserved for patients. I heard and saw a little girl cry the whole time, and the mother was on the phone telling loved ones that the kid had an allergic reaction.

    A man came up and asked the triage nurse about the existence of a lineup. The nurse quoted where we were in the queue, and the man was frustrated because he was here before all of us. Oh well, at least he wasn't sucky about it.

    When it was my turn, the nurse asked me some questions and took my health card. Then I waited again. Then she took my blood pressure and gave me back my card.

    I was then directed to the Rapid Assessment Zone, known as RAZ. My mom and I followed the red dots until we got there and had to wait again in the RAZ lounge.

    I was finally sent to a RAZ room, which consisted of a hospital bed and curtains, and told to undress. I stripped down to my bra, socks, jewelry, glasses and panties and put on a hospital gown. The place was so freaking cold that my mother put my jacket, sweatshirt and sweater over me while I lay there waiting for someone to come and assess me.

    The emergency nurse (a different one) took my blood pressure and gave me a cup to collect a urine sample, which I gladly did after a few minutes. While I lay there, I heard another child crying and a man moaning in pain in the room next to me. I also did not have lunch, though I ate breakfast on the way to the ER.

    All this time, I posted to this forum, and updated you, my boss, friends and family about my status.

    After the nurse collected my urine sample, the doctor came to see me and asked us some questions about my urine problems. The nurse came again, this time to take my blood. She stuck a needle in my arm, drew the blood, and left the needle in there just in case they need to do something else to me (like IV). After that was done, I half-dressed (just put on pants, sneakers and a jacket along with my gown) and went back to the lounge to charge my iPod and wait, all while still updating you, boss, family and friends through email, Facebook and Apple Messenger. The doctor needed to get my medical records, which, unfortunately, were in a medical centre up north, near to where I used to live. My mom had to get the centre's phone number from my sister and pass that information on to this hospital.

    I was STARVING by now (no lunch, remember?), so my mother left to find the vending machine. That was when the doctor came back, so I asked him to wait. When my mother came back, she brought two cookies and a Diet Coke, but it was time to hear the results. The doctor said that I need to see a gynecologist, as well as still see my urologist. So I'm waiting until October to see a doctor near to where I live now, and have her refer me to a gynecologist. I was told that I have huge fibroids and that could be why I'm having problems urinating, and that it's not an emergency. Thank goodness!

    We went to Mickey D's to have lunch/dinner. I ate the two cookies, a Big Mac and an Oreo McFlurry, with water to wash it all down.

    TL;DR: I have problems urinating, so went to the ER. Lay down, gave urine and blood samples, missed lunch, and was told to see a gynecologist as well as the urologist. Went to Mickey D's to eat later.
    Last edited by cindybubbles; 09-13-2013, 11:02 PM.
    cindybubbles (👧 ❤️ 🎂 )

    Enter Cindyland here!

  • #2
    Sounds like it needs to be addressed soon! Good luck!

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    • #3
      Thanks. The doctor saw me and the nurse took my blood, so now I'm waiting for the results.
      cindybubbles (👧 ❤️ 🎂 )

      Enter Cindyland here!

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      • #4
        I'm home from the ER. The doctor said that I need to see a gynecologist, as well as still see my urologist. It's not an emergency, thank goodness.
        cindybubbles (👧 ❤️ 🎂 )

        Enter Cindyland here!

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        • #5
          Yeah if you stop peeing all together that is a dire emergency. Good luck to you.
          ''Sugar cane and coffee cups, copper, steel, and cattle. An annotated history the forest for the fire. Where we propagate confusion primitive and wild. Welcome to the occupation''

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          • #6
            I'm glad it's not a dire emergency. Fibroids suck, though.
            "Is it hot in here to you? It's very warm, isn't it?"--Nero, probably

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            • #7
              Thanks. I'm taking Valium now to relax my bladder when I go to sleep.
              cindybubbles (👧 ❤️ 🎂 )

              Enter Cindyland here!

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              • #8
                Update: No more Valium, as it doesn't help me to sleep. I now take 75mg of store-brand Benadryl and 20mg of Melatonin to help me sleep, but I still go to bed at 4am every day.
                cindybubbles (👧 ❤️ 🎂 )

                Enter Cindyland here!

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                • #9
                  Quoth cindybubbles View Post
                  Update: No more Valium, as it doesn't help me to sleep. I now take 75mg of store-brand Benadryl and 20mg of Melatonin to help me sleep, but I still go to bed at 4am every day.
                  Thats impressive. If I took that, Id be asleep for 3 days.

                  I hope you get your problems situated and can find something that works for you.

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                  • #10
                    Ok, so to confirm, one tablet of Valium DOES NOT WORK for me. Benadryl gets my heart pounding, so that's out, too.

                    Today, I saw my urologist, and he told me that if I could empty my bladder then I should be fine. He told me to increase the dosage of my Detrol to 8mg a day and will see me in 6 weeks.
                    cindybubbles (👧 ❤️ 🎂 )

                    Enter Cindyland here!

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                    • #11
                      Fibroids are often surgery to remove, but since there's already a hole (uterine cervix), they can often be taken out through that.

                      This is patient-to-patient advice (I had a case of 'maybe it's fibroids' so I did the research, some years back); so what your doctor tells you is what you should listen to!


                      Anyway, as I understand it, it's growths inside the uterus; but benign ones. They just have to take them out and all is usually well: you'll probably have an ultrasound to let the gyn surgeon find out where they are and what shapes they are.

                      He/she should then discuss options with you. There are actually several; if I remember rightly. But I'm just now realising how LONG it's been since I did that research; and for the sake of not giving you bad info, I think I'll shut up.
                      Seshat's self-help guide:
                      1. Would you rather be right, or get the result you want?
                      2. If you're consistently getting results you don't want, change what you do.
                      3. Deal with the situation you have now, however it occurred.
                      4. Accept the consequences of your decisions.

                      "All I want is a pretty girl, a decent meal, and the right to shoot lightning at fools." - Anders, Dragon Age.

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                      • #12
                        My fibroids are too small to be considered a threat, according to my latest ultrasound.

                        I may also need a psychological consult due to the fact that I spend tons of time in the bathroom trying to get every drop out, and that every test I had showed me that my bladder is normal.
                        cindybubbles (👧 ❤️ 🎂 )

                        Enter Cindyland here!

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                        • #13
                          Yeah, I'm not really understanding what your bladder problem is. I understand the issue with the fibroids, but what is it that is troubling you about urinating? I don't get how staying up til 4 am is helping, either.

                          Are you having troubling urinating, as in, you need to go, but have trouble getting the urine out?

                          Are you having the "need to pee" sensation even when your bladder isn't full?

                          Are you experiencing urinary incontinence?

                          I get up to pee 1-2 times most nights. Once a night is actually normal and twice a night isn't really abnormal. If you are waking up needing to urinate so much that you aren't getting a restful night's sleep, then that's when it is a problem.

                          Have you monitored your in and out? That is, measured the amount of liquid you drink and the amount of your urine? They should be roughly equal.
                          Don't wanna; not gonna.

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                          • #14
                            Quoth 42_42_42 View Post
                            Yeah, I'm not really understanding what your bladder problem is. I understand the issue with the fibroids, but what is it that is troubling you about urinating? I don't get how staying up til 4 am is helping, either.
                            Staying up, peeing until 4am, ensures that I don't have to get up to go pee. I also have to push to go pee.

                            Quoth 42_42_42 View Post
                            Are you having troubling urinating, as in, you need to go, but have trouble getting the urine out?
                            When I sit down for the first time, no. When I get up to wipe sometimes, the urge hits me again. But it's so little urine in there.

                            Quoth 42_42_42 View Post

                            Are you having the "need to pee" sensation even when your bladder isn't full?
                            Yes.

                            Quoth 42_42_42 View Post

                            Are you experiencing urinary incontinence?
                            No.

                            Quoth 42_42_42 View Post

                            I get up to pee 1-2 times most nights. Once a night is actually normal and twice a night isn't really abnormal. If you are waking up needing to urinate so much that you aren't getting a restful night's sleep, then that's when it is a problem.
                            That's what I fear.

                            I have autism, so I have this bedtime peeing routine that last 5 to 6 hours. Without it, I will get up to go pee. And every time I get up to pee, I have to make my bed and tuck in the sheets because I sleep all tucked in. I HATE that because it takes away precious sleep time. But I HAVE to do it so that I may feel secure and not kick off my blankets or roll out of bed. That's why I stay late to go pee. So I can have at least 6 hours of solid sleep.

                            Quoth 42_42_42 View Post

                            Have you monitored your in and out? That is, measured the amount of liquid you drink and the amount of your urine? They should be roughly equal.
                            Not precisely. I estimate in my head that it takes two hours for whatever I drink to come out as pee, so it should even out.
                            cindybubbles (👧 ❤️ 🎂 )

                            Enter Cindyland here!

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                            • #15
                              Ok. Given your answers to my questions, it honestly seems to me that this is not really a physiological problem. You might need to work with a therapist to sort out your psychological and behavioral issues regarding urinating. I understand that your autism makes change more difficult, but the way you are doing things right now isn't really working for you, or you wouldn't be seeking help.

                              I gather you are not drinking anything after a certain time at night then staying up so that you won't have to get up during your sleep to pee. What you're doing is putting yourself in a state of dehydration and that's not good for you.

                              Like I said in my earlier post, getting up once or twice to pee isn't abnormal. Maybe you can work on your tucking in routine to shorten it so that getting up to pee at night isn't as much of an interruption? Realistically, getting up to pee shouldn't take more than a couple of minutes altogether and add a couple more minutes to get your bedding sorted again and then you're back to sleep. If getting up once is a major disruption you've got to look at the behaviors that are causing the disruption, not the need to pee. Hope that makes sense.

                              I'm gonna guess, since the docs all said your bladder is ok, that your other issues stem from focusing on urination so much. If you are thinking about it all the time, you'll be hyper aware of the need to go, even if your bladder isn't really full. When you go and then feel like you have to go immediately that's usually cause you didn't empty your bladder completely the first time. You need to learn to differentiate between the awareness of urine in the bladder and the true pressure of needing to go. If you're going more than 8-10 times in a 24 hour period you're either drinking more liquid than necessary or you're going when you don't really need to go. Again, I say this with the assumption that you don't have any kind of urinary tract or bladder infection going on or anything else wrong with your bladder or urinary sphincters.
                              Last edited by 42_42_42; 11-15-2013, 04:15 AM. Reason: add a comment
                              Don't wanna; not gonna.

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