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View Full Version : Intestines go "KA-BLOOEY!"


Kara
06-16-2008, 10:49 PM
Sigh.

In case anyone noticed my sudden drop from the face of the planet there, I just got out of the hospital after spending 9 days recovering from emergency surgery.

Last Thursday (the 5th), I feeling fine until the early afternoon. Then I started having really bad cramps. So I took some Midol and went on with life. But the cramps not only persisted, they got worse and worse until the evening, when it suddenly felt like someone grabbed ahold of something inside, dropped a bomb in it, tied it in a knot, and it exploded. We were under a Tornado warning at the time and had tornadoes on the ground in our county, so I was a sniveling, crying mass of Kara huddled up on the floor of the basement. The storms passed without incident, and I could barely move from the pain, so we decided to go to the ER. I knew something was wrong, but I didn't know what. I thought maybe appendix, but the pain was on my left side and the appendix is on the right.

The ER doctor thought the same thing. He pressed on my stomach and I howled in pain. I went back for a CT scan, and waited for the doc to come back and tell me he was going to remove my appendix. The doctor came back with unexpected news.

He said my appendix was fine, but that I have Diverticulitis, which is a condition where one develops "pockets" in their large intestine. Food and waste can get caught in these pockets, causing infection, and thus, pain. If left unchecked, it can eat a hole in the intestine itself. He said that at my age, I had to have been born with it, since it is more common in people 40+ and I was the youngest patient he's ever had with it.

I asked him what he could do. He said there were two options. One would be to remove the affected area of the intestine, be set up with a Colostomy bag, and there would be no lifting for 6 weeks. He saw my eyes well up with tears and said that the Colostomy would be temporary, and could be reversed in 6 months. I did not want a Colostomy, and asked about the second option. He said he could pump me full of broad-spectrum antibiotics for several weeks, then when the intestine is healed, go in and laser-repair the damage. But the recovery would take longer and if the situation was bad enough, it would only delay the first option and I would be in pain until then.

I was terrified. My SO promised me it would be okay, that there were far worse things than Colostomies, and reassured me that she would still love me. I knew I didn't have a choice. I needed to be back to work ASAP, and I needed the unbearable pain to stop. I told the doctor to go ahead with the surgery.

They took me back in the OR to get me ready. I remember faces looking down on me, I remember them gently moving me to the operating table and looking up at that giant round (scary) light. They put up boards on each side to rest my arms, I remember several voices talking at once. I remember the world melting away as I was stating the colors of the rainbow (I guess they don't do "count to 50" anymore).

Next thing I remember, I was in a room with more heads over me. They were asking my name and if I knew where I was/who I was. I said that I did. Then someone said, "Look who's here to see you." My SO brought the kids and her mother in (who was going to be taking care of them while I recovered). The doctor told me I had been out for 5 hours. The surgery took 2 hours, but I apparently also have Sleep Apnea, so they had to monitor my O2 stats very carefully because the oxygen levels kept falling too low. The surgeon told me that everything was fine. He said they removed 8 inches of my large intestine. He also said that the rupture was far worse than what they saw on the CT scan, and if we had waited much longer for the procedure, my body would have gone toxic and there was a high probability that I would have died.

They wheeled my bed to the elevator, I remember nearly screaming as the wheels went *thump* over the gap between the floor and the elevator. The next few days were a muddle of people coming and going (friends, relatives, a few of my senior officers from the prison). Time all ran together in my morphine-induced euphoria.

Now, there are some aspects of surgery that you don't see on TV. When you have surgery, they put in a "drain." It's basically a long tube that goes inside you to whatever area they operated on. The end that is sticking out of your stomach is a kind of oval thingy. It's clear, so you can see the blood and fluids draining out of you. They monitor it to make sure you aren't getting an internal infection. Once that runs primarily translucent (more water than blood), they pull it out. This is an evil, evil procedure. It's literally, "1, 2, 3, PULL!" The damn thing is like 10 inches long. I don't know what it's like to be stabbed, but I know how much it must hurt when the blade is pulled out of you.

The tube down my nose and into my stomach was horrible. Every time I moved my head, it wanted to pull another way Having that damn thing pulled out made my nose burn for days afterward.

Catheters are just weird.

I didn't get anything at all to eat or drink until this past Friday (the 13th). My mouth was constantly dry, and every now and then they'd swap my lips and mouth with a little sponge on a stick. That first cup of water I had was the coolest and most refreshing water I've ever had in my life. I don't have much appetite, even since coming home where I can have "real" food. Food just doesn't seem too great anymore. And it scares me now, too.

Oh yeah, on Thursday (the 12th), they had to open part of my incision because I had developed a hemotoma (pocket of blood) that needed to be drained. This was accomplished by pulling a few of the staples, then the doctor stuck his fingers in and pulled it open. I think people out in the parking lot heard that scream.

The nurses and doctors kept commenting on how great I was doing because I'd page them and ask if they could help me up so I could walk. They said they have to fight with most patients to walk. It seems to me that you aren't going to get any better if you don't do what you're supposed to, but maybe that's just me. Or maybe the majority of patients are asshats.

So now I'm home, and it will be at least the end of next week before I can go back to work. I'll just be running cellhouse control rooms, which is fine by me. I feel like I can't hide the bag and that everyone will be staring at it.

I know there are worse things I could have wound up with. I could be hooked up to machines and various tubes for the rest of my life. And, I'm young enough that the Colostomy will be able to be reversed. Still, I can't help feeling disgusted with myself. I know lots of people out there have them, but it's just.... it's me. It's not supposed to be me. I'm lucky to be alive. I know that. But, if I could be selfish for a moment....

:cry:

Saydrah
06-16-2008, 10:54 PM
:hug: :hug:

You're right-- you ARE lucky to be alive. Be careful with yourself, and don't rush recovery too much. But feel sorry for yourself for a while if you want. Mourn the big change in your life that being diagnosed with a chronic condition brings. Then, like other mourning, come to terms, and go on living.

tropicsgoddess
06-16-2008, 11:06 PM
My ex-boss N has it (diverticulitis). The guy couldn't have anything with seeds in it. It's tough, and I know you'll get through it. :hug: :hug:

Bright_Star
06-16-2008, 11:13 PM
Oh My God...I about tossed my cookies reading about what you endured. Make sure you take it easy for a while.
I hope they gave you some really good pain medicine.

cinema guy
06-16-2008, 11:26 PM
Take it easy and get well soon.

Gravekeeper
06-16-2008, 11:35 PM
Holy crap. I was kinda wondering where you'd gotten off too but damn, that sucks. Immensely. Well, you're alive. This is good. Option 2 probably would have gotten you killed by the sounds of it. ><

Hurry up and get well, then you can...er....take this out on inmates. ^^ See? There's light at the end of the tunnel. Cold, calculating light that laughs at the misfortune of others.

<hugs>

Chanlin
06-17-2008, 12:06 AM
All I can say is owwwwwwiiiieeeeeee.

Its good that you are still alive though. I will echo everyone else and say take it slow. Let yourself recover. An yeah, its ok to be selfish now and then. Have a good cry or whatever it takes to help you cope and then when your done with crying, which will come naturally, you'll be able to move on.

Best wishes and I'll say a prayer or two for you :)

Crazeyal
06-17-2008, 12:10 AM
The fact that you aren't curled up in a ball over this, speaks volumes about you, and the people around you. Bravo to you madame. You'll make it past this. Good luck.

1756GR2
06-17-2008, 04:22 AM
My sympathies, and my confidence that you will heal.

Mom had a similar-sized chunk of hers removed at the age of 75 after an accumulation of tomato seeds caused a big rupture. It's a rough road for a while, but it gets better. One thing we needed to get used to was the...how do I say this?...appearance of her output depending on dietary items. Since I took care of her during the months of her recovery and saw the fright on her face more than once (she being aware of having lost a LARGE amount of blood at home before my brother found her laying in the bathroom), I hung a hopefully comforting little reminder note near her potty chair that said, "It's only beets!" ;)

TequilaSunrise
06-17-2008, 06:28 AM
Daaayyyuuum, Kara! :eek: I wondered where you were lately, as I love your posts. I'm so glad you're all right! Hang in there and continue to heal, you're such a strong woman! What a nightmare.

:hug:

Supermarket Slave Girl
06-17-2008, 07:05 AM
Wishing you a very speedy recovery Kara, take care of yourself hun.

Der Cute
06-17-2008, 08:06 AM
Holy Cow! Or OW!!

Jeez louise, when it hits the fan, it hits the fan. I hope you rest and relax and get better soon. I bet even some of the inmates miss ya!

Cutenoob

Damien
06-17-2008, 08:56 AM
You are very brave, Kara - you are wel on the eay to recovery, because like my dad (who had an ileostomy bag after bowel cancer surgery) you are fighting back.

Good things to you!

crazylegs
06-17-2008, 09:00 AM
You look after yourself y'hear! It's good to hear you're still with us.

:hug::hug::hug:

friendofjimmyk
06-17-2008, 11:52 AM
Wow. I'm so glad to hear that you are okay after all you've been through. I was wondering about you as well...I like your posts!

Take care of yourself and get better. Don't worry about how it will look to others if they see your bag - its none of their business and only an asshat would say anything off the cuff about it...especially anyone who knows what you went through.

I am a curious person - sorry - so I have lots of questions - do you have to change your diet? One poster said their boss couldn't eat seeds. I've heard that before - but I never knew it was caused by this condition. I was just wondering if there is anyway to correct something like that by a nutrition plan. Obviously not going to "correct" it if you don't know it exists - but I mean after the fact.

iradney
06-17-2008, 12:09 PM
Hey Kara

SO glad to hear the op went well! I'll be sending loads of healing thoughts your way, and take it easy ok? Thank heavens your Doc sounds like he knew what he was doing.
I'd give you a hug, but it might hurt...
aw, what the hell, I'll be gentle
*squishie*

Kara
06-17-2008, 02:34 PM
Thanks for the kind words, all. I've just been taking it easy, mainly staying in bed.

do you have to change your diet? One poster said their boss couldn't eat seeds. I've heard that before

There are foods that people like me should avoid, things that are more likely to get caught in the 'pockets" in my intestine. Things like seeds, nuts, popcorn, etc. However, none of these are proven to cause problems in those of us with Diverticulitus. The doctors said I can pretty much eat whatever I want but that I should stay away from the things they think might cause problems.

Not that I have much appetite. I just kind of pick at this of that and call it good.

I've lost 20lbs since I was admitted to the hospital. Perfect for swimsuit season. Except now I have this bag stuck to my side and there's a monstrous, ugly incision scar all the way down my midsection. Ironic.....

Lil Bunny
06-17-2008, 02:43 PM
Kara I've always thought you were pretty amazing with everything you do/have done. This is just another one. I really don't think I'd have come through it with as good as attitude as you do! How you do it amazes me!

I'm glad to hear you're doing ok and I'm sending you guys massive hugs. LOL now stay healthy!

blas
06-17-2008, 02:44 PM
Kara you hang in there and take it easy!

Geek King
06-17-2008, 07:24 PM
Geez, Kara, at least no one can say you take half steps in anything you do! :lol:

Glad you're feeling better, and here's to hoping for a full recovery. :cheers:

FuzzyKitten99
06-17-2008, 09:39 PM
Kara, though I have never had this particular procedure, I have had two c-sections. One asleep and one awake, but numb. You pretty much just had intestine removed instead of a baby, lol! The one where I was awake was a real mindtrip.

I know the feeling of trying to get up and it BURNS like someone has taken a kitchen torch to your abdomen.

I had a catheter for both times and yeah, it was weird. But it was kind of nice not having to get up to go pee for a while. I couldn't with my 2nd one anyway, as my legs were numb for about 2 hours afterward. What a mindfuck that is trying to move your legs, knowing you can, but they just...don't...move. I can only imagine what someone who has been paralyzed feels.

Getting up and moving around as soon as you are cleared for moving around, is the best thing, because it gets your body's organs, especially your intestines, to "wake up" and function normally again. After a c-section, they don't let you go home until you produce a BM or they can hear with the stethoscope that things are moving around at least.

Do you still have pain with the incision? Try cold compresses.

I felt no pain with no meds after about 3-4 weeks. Though I still feel a little numb in the incision area if I touch it while showering.

At least you can do something at work without having to subject yourself to anyone who might make you upset or uncomfortable about your situation. But knowing you, you can probably find a dozen ways to flip the shit (no pun intended) right back at them. Lord knows I would love to be there if/when you did/do!

wagegoth
06-17-2008, 10:45 PM
I'm sorry to hear, Kara, but I'm glad the outcome looks so good.

My grandmother had diverticulitis. She didn't find out until she was in her 70s. One thing that happened -- I don't want to freak you out, but you should be aware -- was later on she became sick. She chalked it up to a virus and age. She was living alone and got sicker and sicker. Finally, she didn't answer her phone one day, so my uncle stopped by. He ended up having to call an ambulance when he found her so sick she couldn't raise her head off the bed. She had developed adhesions -- scars -- from the diverticulitis, that had gradually blocked off part of her intestines. They had to do emergency surgery. She was totally fine afterward, but this is something you should keep in mind.

If you have problems, be sure to check in with your doctor. You have a new condition, and you need to learn about it and how your body handles it.

Greenday
06-17-2008, 11:22 PM
Wow, that's rough. I'm glad to hear you are doing better. I'll be keeping my fingers crossed for a speedy recovery. We need you back and in action to kick the crap out of criminals.

flightfreak
06-19-2008, 05:36 PM
Best of luck on the road to recovery Kara! I've always looked forward to reading another one of your posts. You're right about getting back up and moving again helping speed the road to recovery, just please be careful and don't over do it. I'm sure it also helps that you have such a great support system around you. Good luck again!

morgana
06-19-2008, 06:05 PM
Wow!

Hang in there, Kara. I think it's wonderful how strong you're being with all of this, and I'm so sorry you had to go through it. At least they'll reverse the colostomy soon and you can get back to your ususal take-no-shit self. :rolleyes:

tollbaby
06-20-2008, 07:46 PM
Wow, Kara.... talk about scary :(

My aunt is a stomotherapist - she helps wound care patients deal with their colostomies etc (cause sometimes it's higher up in the digestive system, or in another body part altogether) get used to their stoma and supplies, teaches them how to take care of themselves and keep clean, and basically helps these people get over the self-imposed stigma that everyone must KNOW they poo/pee in a bag strapped to their leg.

You know what? Nobody can tell. Seriously! (unless you're 80 and clumsy when emptying like my father-in-law). The important thing is that the unpleasant little bag means you made it. You're alive, you're on the road to being healthy, and it's *TEMPORARY*.

You are an awesome, strong person, and your SO is awesome for jumping right in with the support - sometimes it takes families a while to get used to the stoma. I'm glad we didn't lose you - and not only for the unique prison stories you keep bringing us!

(sorry, this is one of my very few forays into the off-topic area of the site, and I tend to get verborrhea).

Lynne