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  • Oh, Bugger.

    So today I went to see the spinal surgeon to check out my options for my back now that I'd seen the hip specialist. It's not looking good, here are my options.

    Last resort is the surgeon i saw operating on me to fuse my lower spine, though that's a last resort and he won't even do it until all other options are failures (by which time I'll have propably done myself in beause of being driven mad by the pain) even then it's a less than 50/50 chance of it working and a 40% chance of him cocking up and putting me in a wheelchair. Which to my mind at this moment in time isn't bad odds, even if it went spectacularly wrong and it put me in a wheelchair and didn't work.

    1. Pain management or something or other using yoga or pilates (had me wtfing honestly)

    2. Get a special insole for my shoe which will make my legs level, not that i hold much hope in that because it won't reverse 24 years of damage.

    3. Go to a secondary surgeon, who does the operation a different way, going in from the front, even then the odds may be the same but we're gonna get a second opinion.

    The pain is getting worse, I can feel that I'm reaching my maximum tolerance, not only that but I'm more and more drained from tolerating the pain and sleep is slowly working less and less for me, even when i sleep more often and for longer.

    Hell, I'm reaching a stage now where if the operation had a 50/50 chance of killing me, I'd take it.

    This may give you a hint of how bad it really is pain wise, I scaled my hand with boiling water the other day, and funnily enough, I somewhat enjoyed the pain because it was NEW, not the same old pains i get day in and day out every minute I'm awake.

    Hell, all my life I've been mostly against the idea of using painkillers, but having tried a lot and having them all fail, i'm close to asking to be put on morphine, even if it knocks me the hell out it'd be better than where I'm at now.
    I am the nocturnal echo-locating flying mammal man.

  • #2
    Painkillers can be your friend ... chronic pain is debilitating and can cause more health issues because you are less able to fight off any additional troubles.

    If your insurance will cover it, get into a pain control clinical situation combined with a course of physio to just cover the last final base available before surgery.

    To be honest, stuck in a wheelchair can suck. Travel becomes interesting in the chinese manner [may you live in interesting times] and takes a lot more planning. Shopping gets tricky for many of the same reasons. The world is not set up with gimps in mind. People will be rude to you, and ignore you [you have no idea of how many people will talk to Rob over my head as if I am either not there or I am the village idiot. I am neither dumb nor deaf-mute, I am just a gimp. My body from the waist up works fine, except for the pancreas that is]

    Besides, there is only a 40% chance of ending up in a chair, and physio wont cause problems, might help, and the only thing a pain control clinic will do is make certain you are not doctor shopping for painkillers to feed an addiction. If you aren't seeking painkillers, you shouldn't have any issues with them Just make sure you have all your records available so they can see how your medications have progressed.
    EVE Online: 99% of the time you sit around waiting for something to happen, but that 1% of action is what hooks people like crack, you don't get interviewed by the BBC for a WoW raid.

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    • #3
      Insurance isn't something i need to worry about, as I'm in the UK it's all on the NHS. Funnily enough, other than my back and the pain from that, my health has been generally good, well except for the case of piggy flu i had but beyond that, i seem to fight off illnesses likea champ. Physio has been attempted over a course of months, but that didn't work.

      I don't mean to sound rude or callous by this (as i don't know your circumstances but can guess you didn't choose them), but if it could stop my pain, i'd sacrifice my legs in an instant, it's that bad.

      Even with the chances as they are, I'd still choose to go for it, because even if it went disastrously wrong, at leats i'd have gone and tried getting it fixed.

      I do realise if i ended up in a chair, it would change my life, but, to be honest, I don't have a life now except for this computer, even walking to the shop and back, 400m in total, does me in for the day and causes great pain, mostly in my legs but all over too.

      Painkillers may be my friend, if only I could find one that worked, which I haven't yet.
      I am the nocturnal echo-locating flying mammal man.

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      • #4
        I'm another chronic pain sufferer from the UK.... and I don't know your circumstances at all, but from my experience, pain management may be worth a try. In my case I attended group "classes" with physical therapists who explained as much as they could about pain & gave strategies for coping.

        Also, I'm with you about finding a pain killer that suits, different things work for different people; and, I don't know if your doc has discussed this, but some drugs for other conditions, for example depression, can help with pain reduction too. I'm currently taking an antidepressant along with my painkillers and its made a difference

        Anyway, good luck in whatever happens
        Arp happens!

        Just when I was getting used to yesterday, along came today.

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        • #5
          Quoth RayvenQ View Post
          1. Pain management or something or other using yoga or pilates (had me wtfing honestly)
          I'm not claiming that it's guaranteed to work for you, but... Don't knock it 'till you've tried it. I used to suffer from chronic back pain (car accident, long story), in rare instances bad enough that i would be unable to get out of bed. I tried all sorts of things, including chiropractic care. Nothing worked for me, and i spent most of my days in some degree of pain. Usually, it was minor, but, it could get quite bad. Anyway... A friend of mine suggested i try yoga. I've been taking a class once every other week, and doing yoga at home for over two years now. Since starting, i've been completely free of lower back pain.

          Remember the friend i mentioned above? She was suffering from severe back / neck pain, and was told the only option was drastic surgery (basically, fusing things). She's been almost completely pain free for several years now, since taking up yoga.


          I know how it sounds... I was a doubter too at first, but... I can't argue with the results. I'm not saying it's for you, but... It may be worth a try.

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          • #6
            rayven, has anyone discussed electrostimulation to assist with the pain? i had an instructor in tech school who used it after having 7 discs removed and 5 vertebrae fused. he was able to move and teach while standing for most of the classes. i think he only missed 3 in my time under him. it may not take it away but it could cut it down to manageable.
            This is a drama-free zone; violators will be slapped. -Irving Patrick Freleigh
            my blog:http://steeledragon.wordpress.com/

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            • #7
              And now, to top it all off, I've got hit by bloody depression for some reason, yesterday it started, being so bad I'm not motivated to do anything, not even eat, not since yesterday or the day before i really can't remember. Posting on here is hard enough.
              I am the nocturnal echo-locating flying mammal man.

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