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  • Fibromyalgia

    So those of you who remember my chronic pain issues...it's starting to look like fibromyalgia might be the cause.

    All of my symptoms fit. Fibromyalgia can even screw with synthroid and thyroid levels which may be why the docs can't get me stabilized on my synthroid.

    Which means I can look forward to even MORE doctors scoffing at me.

    Anyone here have it or experience with it?
    My dollhouse blog.

    Blog about life

  • #2
    One of my very good friends has it.

    I hope your doctors are able to find the right course of treatment to give you relief.
    Too tired of living and too tired to end it. What a conundrum.

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    • #3
      I was diagnosed about 5 years ago. I'm not on anything but over the counter pain medication. I should be on medication and it has been offered to me, but I'm stubborn about things like that. I don't have many answers but I can offer some suggestions if you want them. Just PM me.

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      • #4
        My best friend has it.

        however, she's found that by cutting most gluten, dairy, and meat from her diet has helped a LOT. She still needs pain meds, but it's much more manageable.
        "Eventually, everything that you have said becomes everything you will ever say." Eireann

        My pony dolls: http://equestriarags.tumblr.com

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        • #5
          That's an especially bad disease to have; as you hint, many doctors don't believe in it.
          Now the trouble about trying to make yourself stupider than you really are is that you very often succeed.

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          • #6
            My step MIL has it. I remember reading an article about it in the renton valley medical newsletter about how it was found that a lot of cases when they did MRI's of the neck in different positions there was a pinched nerve or something can't remember exactly, when the head was tilted back that seemed to be the cause of all the pain.
            It's not that I'm lazy, it's that I just don't care. -Office space

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            • #7
              I have it, I was diagnosed with it in December. I take medication twice daily for it, seems to have helped, since it isn't as bad, but I still have my days..

              I was actually skeptical about it...then I got it..
              Everything is great when you're a kid, then you grow up and suddenly you're afraid of the monkey bars...

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              • #8
                My mom has it. I do not know of it causing problems with her thyroid meds, though (she had 1/2 her thyroid removed when I was a kid and has been on meds ever since).
                I don't go in for ancient wisdom
                I don't believe just 'cause ideas are tenacious
                It means that they're worthy - Tim Minchin, "White Wine in the Sun"

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                • #9
                  I have it. I've had it since I was 14. I ain't admitting my age, but I've been dealing with it for longer than some of our board members have been alive. And that's a long damn time to be in pain.

                  I'm just gonna leave this with PM me if you want tips/some info I've gleaned over the years, or this is gonna turn into a lecture type post.

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                  • #10
                    My mother and one of my sisters has it as well. My mother's is particularly bad but its coupled with rheumatoid arthritis that she's had since she was 16. So having seen her suffer for years this was hardly the happiest news to get.

                    Still, it's nice to have a name to go with it instead of docs looking at me like I'm crazy. They still will, probably, but now the crazy has a name *ROFL*

                    I was really bad on Saturday but beyond some minor elbow ache I seem to be ok today.
                    My dollhouse blog.

                    Blog about life

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                    • #11
                      My friend has it. She started showing symptoms of it after she gave birth to her daughter at the beginning of last year. She went to a doctor to get it checked out and they did some work and found out that she has Fibromyalgia and some arthritis. I told my friend about this thread. She recommends going to a rhumatologist to get it checked out. She had the scoffing problem with her regular doctors so she went to her rhumatologist and he took her seriously and found out that she did have Fibromyalgia.
                      Last edited by Sunsetsky; 03-04-2010, 07:17 PM.

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                      • #12
                        I'm going to my general practictioner on Tuesday. She's the one who mentioned the fibro. She's going to recommend me to a rheumatologist and if my thyroid levels are still not stabilized she's going to send me to an endocrinologist as well.

                        So ok. Hypothyroid, asthma, vitiligo, and now Fibromyalgia.

                        I think I hit my quota, universe...thank you! *ROFL*
                        My dollhouse blog.

                        Blog about life

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