So this is what it's come to..

[kansasgal]

I'm sorry you're having a bad night Mytical, I hope that today is better for you.

[Mikkel]

If it helps you to post an epic complaint, do so. Should anyone be tired of hearing about it (and I'm not so sure of that) it's easy enough to jump to the next thread.

I hope you will feel better soon.

[Mytical]

Bright spot is I received a care package from one of the members of the board (which including the fudge I received earlier is two packages). Pain has went down again (yay) and even got some sleep, so things look a little better today. Just so tired of getting maybe 30-45 minutes of sleep at a time before pain wakes me up. Sure I lay in the bed for quite a bit, but not much actual sleep.

[Der Cute]

Bright spot is I received a care package from one of the members of the board (which including the fudge I received earlier is two packages). Pain has went down again (yay) and even got some sleep, so things look a little better today. Just so tired of getting maybe 30-45 minutes of sleep at a time before pain wakes me up. Sure I lay in the bed for quite a bit, but not much actual sleep.

Yay for bright spots. Really. When you feel like shit, these are such important things. Any progress on the assistance end?

[Mytical]

*nods* quite a bit actually. Since we got the info straightened out the food assistance we get is supposed to move up to over 400 a month. All my meds are pretty much covered (except any new ones I might get). Electric bill is now a flat $65 a month for a year, then should drop down. So far that is all.

[Food Lady]

I'm so happy you're getting so much more food assistance!

[Mytical]

Which we should have been getting from day one, instead of (like one month) $9 (for the whole month). Simply because they pulled an amount out of their behind ($150 for rent instead of $542). I hate the fact that we need assistance, and won't should I ever get my disability.

[Akasa]

You're getting it when you need now. That's what matters. You can get your meds and food. That's the important thing to keep in mind.

[Food Lady]

^ yes, exactly. If you need it, you need it.

[Der Cute]

Pride < food.
Really. Now, now that you've got the assistance, try to eat healthy as you can? Do you think that (healthy eating) would make a difference in your healing?
food stamps cover veggie and herb SEEDS. I bought pea and carrot seeds and honestly have saved a few bucks. when the beans start producing that'll save me more money. It might be late in your area to plant, or you might not have the stuff to do it with, but keep that in mind. Plus the gardening aspect of it helps keep me sane-ish.

Yay food yay meds! Again, you may also qualify for a food delivery from a food bank. Since you're pretty limited on mobility (please, I'm not trying to offend you I promise) you might be able to have a bag of groceries delivered. Call around. I'm saying this to try to save you some energy.
To not feel useless: Find something to do with your hands that doesn't take a lot of movement. Knitting, crochet, Wii, puzzles, some hand held games, puter stuff, books. If you've got some skills in there you can DO something and feel worthy. I'd look into the crochet/knit (I know, I know) so you can make something and donate it - give back to community. Draw? Paint? Heck, learn ASL. But hand and brain busy.

There's nothing wrong with NEEDING and ASKING and RECEIVING. What's wrong is NEEDING and WASTING. You're not anywhere close to that. Keep your head up.

[Mytical]

I am keeping as mobile and active as I can, though seems less every day. I've accepted that I need the help they are giving. I eat a lot healthier then I ever have. Mostly more fruits and melons. Just need a way to regain my strength. I will survive.

[Mytical]

Just got denied again for medicaid. I give up. What the freak is the sense in fighting any more? I've got nothing left in the tank. Guess it is time to just stop taking medicines/going to the doctors..if I go back into the ICU and survive, maybe things will change.

[kansasgal]

Why did they deny you Mytical?

[Aethian]

Just got denied again for medicaid.

That is messed up.

[Der Cute]

http://www.olrs.ohio.gov/services Disability Advocates
http://www.legislature.state.oh.us/constitution.cfm Searchable state const. Your denial letter should have statutes in it. See why you don't "fit" and call them on it. But your Advocate ^^ see above would have this under their belt.
http://ohio.gov/how/government.stm#4 contact your state rep. Write them a I'm Pissed Gram and see what they can do to help you. That's what they're there for.

http://www.planswohio.org/services.html Long term care /planning for long term issues

Fuck. If I was there I'd help you, I have Google-fu and have kind of been an advocate for a friend who had some serious shit on her plate.

How is the SSI/SSDI stuff coming along?