OK...up to this point, I tried to keep the details of the person vague, but as I mentioned, people have obviously guessed it.
I blocked the person on FB after some annoying back and forth initiated by them and I tried to comment to their blog, but only team members are allowed to comment.
So, since I can't comment because I have been blocked from the FB page, can't message on FB since I blocked them, and can't comment on the blog, I am putting this here, because I know friends are reading and reporting back to the person.
In response to comments about tertiary hospitals, apparently, the condition is quite rare, and while there are tertiary hospitals available, there are not many that specialize in this particular condition.
I did actually do some googling, even though I know I should just let it all go for my own health, but I found this.
Friend of this person, has this place been considered as an option? (I'm not exactly sure where the person lives, but I think this is near them.) If this was an option considered and dropped, possibly because of costs, or the person is already using this option, then I'm sorry for wasting time.
http://brochures.mater.org.au/Home/B...usion-syndrome
Could these places put you in touch with something to help?
http://www.tttsfoundation.org/
(From their site: info@tttsfoundation.org Click here if you have a diagnosis of TTTS and need to contact the Foundation for immediate support, updates or questions.)
http://www.amba.org.au/
Any of these places:
List of TTTS Treatment Centres
AUSTRALIA
Dr Mark Umstad
Head of Multiple Pregnancy Clinic
Royal Women's Hospital & Frances Perry House
Grattan Street
Carlton Vic 3053 Australia
Phone: 03 9221 5044
Fax: 03 9221 5244
mark.umstad@maynegroup.com
Leanne Luck
CNC High Risk Pregnancy
Westmead Hospital Australia
Phone: 9845 5555 Page no. 01728
Dr Neil Athayde
Westmead Centre, Australia
Phone: 9845 6802 or 9845 5555
Fax: 9845 7793
Neila@westgate.wh.usyd.edu.au
Dr Daniel Challis
Royal Hospital for Women
Randwick, Australia
Phone: 9382 6098 or 9382 6111
Fax: 9382 6706
Dan@challis.com.au
Dr John Smoleniec
Liverpool Hospital, Australia
Phone: 98285631 98285679
Fax: 98285672 / 98285570
John.Smoleniec@swsahs.nsw.gov.au
Dr Jan Dickinson & Dr Craig Pennel
King Edward Memorial Hospital
Perth 374 Bagot Road,
Subiaco Australia WA6008
Contact Karen Reid
Clinical Midwife Consultant
Phone:61893402705
karen.reid@health.wa.gov.au
Robert Cincotta
Director, Maternal Fetal Medicine
Mater Mothers' Hospital
South Brisbane
Queensland, Australia
Phone: 07 3840 8111 (pager 346)
Fax: 07 3840 1949
Robert_Cincotta@mater.org.au
Barbara Soong
Clinical Midwife Consultant
Phone: 07 3840 8111 (pager 894)
Fax: 07 3840 1890
b_soong@mater.org.au
Professor Nicholas Fisk, Dr Carol Portmann & Dr Greg Duncombe
Centre for Advanced Prenatal Care
Royal Brisbane & Women's Hospital
Brisbane, Queensland 4029
n.fisk@uq.edu.au or carol_portmann@health.qld.gov.au
http://www.uqccr.uq.edu.au/
Phone:07 3636 4467
Fax: 073636 7798
Westmead Hospital (Two of the doctors on the list provided at the TTTS Foundation website's list of services are on staff here, and it is a tertiary hospital)
Community Health Facilities
http://www.wslhd.health.nsw.gov.au/Hospitals/Hospitals
I blocked the person on FB after some annoying back and forth initiated by them and I tried to comment to their blog, but only team members are allowed to comment.
So, since I can't comment because I have been blocked from the FB page, can't message on FB since I blocked them, and can't comment on the blog, I am putting this here, because I know friends are reading and reporting back to the person.
In response to comments about tertiary hospitals, apparently, the condition is quite rare, and while there are tertiary hospitals available, there are not many that specialize in this particular condition.
I did actually do some googling, even though I know I should just let it all go for my own health, but I found this.
Friend of this person, has this place been considered as an option? (I'm not exactly sure where the person lives, but I think this is near them.) If this was an option considered and dropped, possibly because of costs, or the person is already using this option, then I'm sorry for wasting time.
http://brochures.mater.org.au/Home/B...usion-syndrome
Could these places put you in touch with something to help?
http://www.tttsfoundation.org/
(From their site: info@tttsfoundation.org Click here if you have a diagnosis of TTTS and need to contact the Foundation for immediate support, updates or questions.)
http://www.amba.org.au/
Any of these places:
List of TTTS Treatment Centres
AUSTRALIA
Dr Mark Umstad
Head of Multiple Pregnancy Clinic
Royal Women's Hospital & Frances Perry House
Grattan Street
Carlton Vic 3053 Australia
Phone: 03 9221 5044
Fax: 03 9221 5244
mark.umstad@maynegroup.com
Leanne Luck
CNC High Risk Pregnancy
Westmead Hospital Australia
Phone: 9845 5555 Page no. 01728
Dr Neil Athayde
Westmead Centre, Australia
Phone: 9845 6802 or 9845 5555
Fax: 9845 7793
Neila@westgate.wh.usyd.edu.au
Dr Daniel Challis
Royal Hospital for Women
Randwick, Australia
Phone: 9382 6098 or 9382 6111
Fax: 9382 6706
Dan@challis.com.au
Dr John Smoleniec
Liverpool Hospital, Australia
Phone: 98285631 98285679
Fax: 98285672 / 98285570
John.Smoleniec@swsahs.nsw.gov.au
Dr Jan Dickinson & Dr Craig Pennel
King Edward Memorial Hospital
Perth 374 Bagot Road,
Subiaco Australia WA6008
Contact Karen Reid
Clinical Midwife Consultant
Phone:61893402705
karen.reid@health.wa.gov.au
Robert Cincotta
Director, Maternal Fetal Medicine
Mater Mothers' Hospital
South Brisbane
Queensland, Australia
Phone: 07 3840 8111 (pager 346)
Fax: 07 3840 1949
Robert_Cincotta@mater.org.au
Barbara Soong
Clinical Midwife Consultant
Phone: 07 3840 8111 (pager 894)
Fax: 07 3840 1890
b_soong@mater.org.au
Professor Nicholas Fisk, Dr Carol Portmann & Dr Greg Duncombe
Centre for Advanced Prenatal Care
Royal Brisbane & Women's Hospital
Brisbane, Queensland 4029
n.fisk@uq.edu.au or carol_portmann@health.qld.gov.au
http://www.uqccr.uq.edu.au/
Phone:07 3636 4467
Fax: 073636 7798
Westmead Hospital (Two of the doctors on the list provided at the TTTS Foundation website's list of services are on staff here, and it is a tertiary hospital)
Community Health Facilities
http://www.wslhd.health.nsw.gov.au/Hospitals/Hospitals
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