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Latest update: we are now at UPMC under the care of the NF Specialist from the NFCA. There is some concern with not only the fibromas in the neck but the one against the back of his heart tomorrow morning Cardiology will be in to speak with us. The NF specialist said the fibroma near the heart needs addressed first I am scared to death. Please send positive thoughts and payers.
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Praying really hard for a good result.
Don't tempt pixies, it never ends well.
Avatar created by the lovely Eisa.Comment
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Positive Update: today Cardiogy came in and told us that the fibroma near the back of his heart is not impending on the heart. The NF Neurosurgeon came in this eveni g Nd said that the masses in the neck are not to the point that it is necessary to remove them. We are waiting on some cultures to come back on the skin I texting he developed that is not healing rightComment
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That's good to hear about the heart fibroma. /hugsBy popular request....I am now officially the Enemy of Normalcy.
"What is unobtainium? To Seraph, it's a normal client. :P" -- Observant FriendComment
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Phew. Some good news for all this mess! Hugs to you and honey.In my heart, in my soul, I'm a woman for rock & roll.
She's as fast as slugs on barbituates.Comment
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*hugs* Hope things turn out ok..not sure how I missed this thread.Engaged to the amazing Marmalady. She is my Silver Dragon, shining as bright as the sun. I her Black Dragon (though good honestly), dark as night..fierce and strong.Comment
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Still praying for you, dear. <3"Is it hot in here to you? It's very warm, isn't it?"--Nero, probablyComment
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We are home. Hubby is grumpy but glad to be homeComment
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Good to hear!
Some people just need a high five...
In the face with the back of a chair....
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