With having to deal with Neurofibromatosis (even though it is not me, but hubby) I understand some of what Plaidman was dealing with. Hubby and my hope is that with this happening and the other CSers reaching out to learn about and make donations in his memory, that more people can be accepting of those with NF and the money donated could finally find a cure.
The gene that causes NF was discovered 21 years ago. Medicines have been tried to control the fibroma growths. Treatments have been found to help to shrink the internal fibromas that they can not remove surgically. The researchers say that once a cure was NF is found a cure for cancer is not far behind.
HUBBY:
There is a couple of comments that I would like to make. For Plaidman I truly understand. Within a five month time period, I had 12 suicide attempts. I understand all the pain physically that has to be lived with, especially when a fibroma has its roots on a nerve. I can go into greater detail to anyone who want to have a conversation. Just ask. As for Plaidman, please keep him and his family in your thoughts and prayers. I will look forward to talk when asked
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I know I sound like a broken record and a spammer but people can always make donation to the NFNetwork.org in his name ("Driver" Liles). I donated yesterday though their PayPal link, I emailed them asking them to put it in his name and memory.Quoth Rapscallion View PostIf you're in the region and able to attend, I think they'd like the company. If you're not, please remember him in your own way.
Rapscallion
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I dropped in specifically to see this thread, idrinkarum told me. I might not be around here anymore, but I'm saddened by the loss of Plaidman. There's not a lot I can say about him that hasn't been mentioned by other people.
I did want to add though - in addition to calling suicide prevention lines if you are feeling like it might be an option for you, they are apparently willing to help if you call because you don't know how to help a friend. After a friend committed suicide last year, one of the guys explained that he used to call the suicide help line and explain what this friend had been doing, and how he had responded, was there a better way next time? And they were quite helpful. It's not something that you can be expected to prevent, but if you're feeling helpless because of a friend, it's a resource for you too.
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/AgreeQuoth Jester View PostWhen you know what happened, as horrible as it may be, as much as the details may give you nightmares and waking visions you wish you could erase, you know what the source is, and you can go about exorcising that demon.
When you don't know, when there are a myriad of possibilities, it is just not possible to exorcise all those demons, as there are just too many of them to focus on individually.
*part whited out for a TMI warning - don't read if you're squeemish about suicidemethods*
When i know someone committed suicide and i don't know the method I see a generic body hanging from the ceiling in my mind. Because that's how someone i knew well ended his life.
This somehow makes it easier for me, what you said makes perfect sense, i tend to very strictly limit the way i think on it.
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I didn't know Plaidman other than his posts on here. From those I could tell how kind and welcoming he was. I mean, I barely knew him at all and the instantI saw on someone's sig RIP PLAIDMAN I searched for the truth and began crying! My heart truly goes out to him and his friends/family both at home and online. I hope that he is in peace now.
I've never had to type and cry before. I've never realised how hard it is!
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It;s ok, that was expressed fine.Quoth Marmalady View PostI've been reading all these offers of help, of a listening ear, and it strikes me that Plaidman's true legacy may be that the rest of us will always know we have someone caring for us... if that doesn't sound too hi-falutin'?... but I can't work out how to express it any better.
Though I wish he hadn't had to leave a legacy yet (dammit Plaid, why???), it's been truly amazing to see the community pull together this week.
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I'd be happy to endorse this idea. I will not name anyone, but today alone, I was communicating with people via cs chat (and private conversations in cs chat), cs.com (and PM's here), Facebook messaging, Skype messenger, and text messaging on my cell # (I got a call from a number I didn't recognize and wondered if someone was calling me to talk. It turned out to be a wrong number, but I wasn't opposed to the idea). At one point, all of these at the same time. I spent my day off by going to a 12:30 matinee and then volunteering my time to anyone who needed someone to talk to, for a wide variety of reasons.
To anyone who thinks I was swamped, understand that I enjoyed this. It's... I don't know, maybe a coincidence, maybe fate, who knows why, but last week I realized that I like to help others. That helping people makes me happy. I meant every word I said when I offered all my contact info to anyone who needs it. Seriously, if anyone lived anywhere near me (only 1 member does, as far as I know) I would be willing to meet for a cup of coffee (or tea) to talk. I didn't feel "bothered" at all to do any of this. Due to the hours of my shift (2-10 Central Standard Time), I may not be the most accessible all the time, but I stay up late so I've got plenty of time to catch up and respond.
What I'm trying to say is, that today I pretty much was a hotline. So if anyone wanted to make something "official," I'm in.
And the keyword in this is "volunteer." I expect nothing in return for this. It's enough that I can at least try to be there for others the way Plaidman was, that I can honor his memory by doing what he did for me so many times over the years.Last edited by Kara; 07-01-2011, 07:12 AM.
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I've been reading all these offers of help, of a listening ear, and it strikes me that Plaidman's true legacy may be that the rest of us will always know we have someone caring for us... if that doesn't sound too hi-falutin'?... but I can't work out how to express it any better.
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I second this idea! Goodness knows I've needed this kind of help a time or two in the past (as some of you can attest to) and likely will in the future. A reminder that help is available from people who care is always a good thing.Quoth Taboo View PostThrowing myself onto the list of people who are happy to listen if anyone needs it. I actually think it would be good to put a sticky somewhere with various crisis numbers and then a list of members who have offered here to be sounding boards for others; it would be good to have everyone in one place like that, especially for future board members who may not know about this thread.
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Nail on the head right there, man, nail on the head.Quoth Jester View PostWhen you don't know, when there are a myriad of possibilities, it is just not possible to exorcise all those demons, as there are just too many of them to focus on individually.
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R.I.P. Plaidman.
You deserve to be away from pain, and I hope you have found it.
A song for you.
Godspeed
JohnLast edited by Bandit; 07-01-2011, 06:03 AM.
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Throwing myself onto the list of people who are happy to listen if anyone needs it. I actually think it would be good to put a sticky somewhere with various crisis numbers and then a list of members who have offered here to be sounding boards for others; it would be good to have everyone in one place like that, especially for future board members who may not know about this thread.
I've been through mental health problems, abusive family, and at one point checked myself into a mental institute because I couldn't trust myself to be alone. I'm younger than many of the others offering to listen, but I do have some experience with this sort of thing and I am absolutely sincere. If you PM me on here, I will get it in my email and can pass along other contact info, or you can ask me to add you on Facebook. I work freelance and am often available even when 'at work'.
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I think I can explain this, as I have struggled with this myself, not just in this situation, but in others as well. And tonight, I think I figured out why.Quoth RetailWorkhorse View PostI wish to know why. I always wish to know why.
At the same time, I don't want to know.
But I want to know.
When you know what happened, as horrible as it may be, as much as the details may give you nightmares and waking visions you wish you could erase, you know what the source is, and you can go about exorcising that demon.
When you don't know, when there are a myriad of possibilities, it is just not possible to exorcise all those demons, as there are just too many of them to focus on individually.
At least, that's the way I see it. And of course, not everyone is like you or I....not everyone needs or even wants to know.
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I wish to know why. I always wish to know why.Quoth Rapscallion View PostThe details are something I don't want to discuss, but some of you already know them.
At the same time, I don't want to know.
But I want to know.
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